Studying the Scope of Parental Expenditures (SCOPE): web-based survey

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Document Provider:
Susanne Mayer
Developer:
Department of Medical Genetics, University of British Columbia, Canada
Contact Details:
patricia.birch@ubc.ca
Copyright:
With Developer
Country of Origin:
Canada

Study Completed:
Yes
Year:
2015

DIRUM ID:
99
DIRUM Listing:
22/02/2017

Disease Categories

Developmental, psychosocial, & learning problems

Populations - Age

Age Range: 1 - 18

Populations - Sex

Male and Female

Administration Methods

Via computer

Instrument Types

Recall questionnaire

Person(s) Completing Instrument

Parent/carer

Settings of Care

Community

Nature of Intervention

Active monitoring

Items of Resource Being Measured

GP
Inpatient
Community nurse
Outpatient
Employer
Social services
Physiotherapy
Other non-NHS - speech therapy

Other Characterisation Details

Frequency Of Economic Data Collection - N/A
Maximum Recall Period - 4 to 6 months

Primary References

Genereaux, D., van Karnebeek, C.D. and Birch, P.H., Costs of caring for children with an intellectual developmental disorder, Disability and Health Journal, 2015, 8, 646-651

DOI: 10.1016/j.dhjo.2015.03.011

Piloting of questionnaires for patient / carer completion

Genereaux, D., Bansback, N. and Birch, P., Development and pilot testing of a tool to calculate parental and societal costs of raising a child with intellectual disability., Journal of Intellectual and Developmental Disability, 2016, 41, 11-20

DOI: 10.3109/13668250.2015.1087479


Instrument Resource


Conditions of Use

  • With written permission of copyright holder

Supporting Materials

  • User instructions on website

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