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Methodological Papers

Chishti, Tahira; Harris, Tess; Conroy, Rachel; Oakeshott, Pippa; Tulloch, Jenny; Coster, Denise; Kerry, Sarah R; Kerry, Sally M, How reliable are stroke patients’ reports of their numbers of general practice consultations over 12 months?, Family Practice, 2013, 30, 119-122

DOI: 10.1093/fampra/cms042

Hunger, Matthias; Schwarzkopf, Larissa; Heier, Margit; Peters, Annette; Holle, Rolf, Official statistics and claims data records indicate non-response and recall bias within survey-based estimates of health care utilization in the older population, BMC Health Services Research, 2013, 13, 1

DOI: 10.1186/1472-6963-13-1

Marques E, Johnson EC, Gooberman-Hill R, Blom AW, Noble S., Using resource use logs to reduce the amount of missing data in economic evaluations alongside trials., Value in Health, 2013, 16, 195-201

DOI: 10.1016/j.jval.2012.09.008

Gordon, Louisa G; Patrao, Tania; Hawkes, Anna L, Can colorectal cancer survivors recall their medications and doctor visits reliably?, BMC Health Services Research, 2012, 12, 440

DOI: 10.1186/1472-6963-12-440

Sabes-Figuera, R; McCrone, P; Sharac, J; Csipke, E; Craig, TKJ; Rose, DS; Pearman, D; Wykes, T, Developing a tool for collecting and costing activity data on psychiatric inpatient wards, Epidemiology and Psychiatric Sciences, 2012, 21, 393-399


Seidl, Hildegard; Meisinger, Christa; Wende, Rupert; Holle, Rolf, Empirical analysis shows reduced cost data collection may be an efficient method in economic clinical trials, BMC Health Services Research, 2012, 12, 318

DOI: 10.1186/1472-6963-12-318

Heinrich, S.;Deister, A.;Birker, T.;Hierholzer, C.;Weigelt, I.;Zeichner, D.;Angermeyer, M. C.;Roick, C.;Konig, H. H., Accuracy of self-reports of mental health care utilization and calculated costs compared to hospital records, Psychiatry Research, 2011, 185, 261-268

DOI: 10.1016/j.psychres.2010.04.053

Clifasefi, Seema L., Agreement between self-report and archival public service utilization data among chronically homeless individuals with severe alcohol problems, Journal of Community Psychology, 2011, 39, 631-644

DOI: 10.1002/jcop.20457

Glass, J. E.;Bucholz, K. K., Concordance between self-reports and archival records of physician visits: a case-control study comparing individuals with and without alcohol use disorders in the community, Drug & Alcohol Dependence, 2011, 116, 57-63

DOI: 10.1016/j.drugalcdep.2010.11.021

Longobardi T, Walker J, Graff L, et al, Health service utilization in IBD: comparison of self-report and administrative data, Health Services Research, 2011, 11, 1-8

DOI: 10.1186/1472-6963-11-137

Longobardi, T.;Walker, J. R.;Graff, L. A.;Bernstein, C. N., Health service utilization in IBD: comparison of self-report and administrative data, BMC Health Services Research, 2011, 11, 137

DOI: 10.1186/1472-6963-11-137

Smaldone, A.;Tsimicalis, A.;Stone, P. W., Measuring resource utilization in patient-oriented comparative effectiveness research: a psychometric study of the Resource Utilization Questionnaire, Research & Theory for Nursing Practice, 2011, 25, 80-106


Martin A, Jones A, Mugford M, et al, Methods used to identify and measure resource use in economic evaluations: a systematic review of questionnaires for older people, Health Economics, 2011,

DOI: 10.1002/hec.1766

Rolstad S , Adler J, Rydén A, Response Burden and Questionnaire Length: Is Shorter Better? A Review and Meta-analysis, Value in Health, 2011,

DOI: doi:10.1016/j.jval.2011.06.003

Robling M R, Ingledew D K, Greene G, et al, Applying an extended theoretical framework for data collection mode to health services research, BMC Health Services Research, 2010, 10, 10-180

DOI: 10.1186/1472-6963-10-180

Ridyard C H, Hughes D A, Methods for the collection of resource use data within clinical trials: A systematic review of trials funded by the UK Health Technology Assessment programme, Value in Health, 2010, 13, 867-72

DOI: 10.1111/j.1524-4733.2010.00788.x

Yu S, Chang H, Lin M, et al, Agreement between self-reported and health insurance claims on utilization of health care: A population study, Journal of Clinical Epidemiology, 2009, 62, 1316–1322

DOI: 10.1016/j.jclinepi.2009.01.016

Tan S S, Rutten F F, van Ineveld B M, et al., Comparing methodologies for the cost estimation of hospital services, European Journal of Health Economics , 2009, 10, 39-45

DOI: 10.1007/s10198-008-0101-x

Lairson, David R; Basu, Rituparna; Begley, Charles E; Reynolds, Thomas, Concordance of survey and billing data in a study of outpatient healthcare cost and utilization among epilepsy patients, Epilepsy research, 2009, 87, 59-69

DOI: 10.1016/j.eplepsyres.2009.07.010

Neumann P J, Costing and perspective in published cost-effectiveness analyses, Medical Care, 2009, 47, s28-32

DOI: 10.1097/MLR.0b013e31819bc09d

Short, M. E.;Goetzel, R. Z.;Pei, X.;Tabrizi, M. J.;Ozminkowski, R. J.;Gibson, T. B.;Dejoy, D. M.;Wilson, M. G., How accurate are self-reports? Analysis of self-reported health care utilization and absence when compared with administrative data, Journal of Occupational & Environmental Medicine, 2009, 51, 786-796

DOI: 10.1097/JOM.0b013e3181a86671

Hoogendoorn M, van Wetering C, Schols A, et al, Self-report versus care provider registration of healthcare utilization: impact on cost and cost-utility, International Journal of Technology Assessment in Health Care, 2009, 25, 588-595

DOI: 10.1017/S0266462309990432

Short, M. E.;Goetzel, R. Z.;Pei, X.;Tabrizi, M. J.;Ozminkowski, R. J.;Gibson, T. B.;Dejoy, D. M.;Wilson, M. G., Short, M. E.;Goetzel, R. Z.;Pei, X.;Tabrizi, M. J.;Ozminkowski, R. J.;Gibson, T. B.;Dejoy, D. M.;Wilson, M. G. How accurate are self-reports? Analysis of self-reported health care utilization and absence when compared with administrative data, Journal of Occupational & Environmental Medicine , 2009, 51, 876-796

DOI: 10.1097/JOM.0b013e3181a86671

Nielsen W M, Sondergaard B, Kjoller M, et al, Agreement between self-reported data on medicine use and prescription records vary according to method of analysis and therapeutic group, Journal of Clinical Epidemiology, 2008, Volume 61, 919-924

DOI: 10.1016/j.jclinepi.2007.10.021

Schweikert, B.;Hahmann, H.;Leidl, R., Development and first assessment of a questionnaire for health care utilization and costs for cardiac patients, BMC Health Services Research, 2008, 8, 187

DOI: 10.1186/1472-6963-8-187

Jakubowski, Scott F.;Crane, D. Russell RussCrane, Marriage and family therapy research in health care: Investigating the accuracy of self and family reports of medical use, American Journal of Family Therapy, 2008, 36, 437-448

DOI: 10.1080/01926180701441320

Mauldin, P. D.;Guimaraes, P.;Albin, R. L.;Ray, Dorsey E.;Bainbridge, J. L.;Siderowf, A.;Ninds, N. E. T., Optimal frequency for measuring health care resource utilization in Parkinson's disease using participant recall: the FS-TOO resource utilization substudy, Clinical Therapeutics, 2008, 30, 1553-1557

DOI: 10.1016/j.clinthera.2008.08.001

Clarke P M, Fiebig D G, Gerdtham U G, Optimal recall length in survey design, Journal Health Economics , 2008, 27, 1275-84

DOI: 10.1016/j.jhealeco.2008.05.012

Fung C H, Hays R D, Prospects and challenges in using patient-reported outcomes in clinical practice, Quality Life Research, 2008, 17, 1297–302

DOI: 10.1007/s11136-008-9379-5

Chung, S.;Domino, M. E.;Jackson, E. W.;Morrissey, J. P., Reliability of self-reported health service use: evidence from the women with co-occurring disorders, and violence study, Journal of Behavioral Health Services & Research, 2008, 35, 265-278

Nielsen, R.;Johannessen, A.;Schnelle, H. M.;Bakke, P. S.;Askildsen, J. E.;Omenaas, E. R.;Gulsvik, A., Repeatability of health economic data in COPD, Respiratory Medicine, 2008, 102, 1556-1562

DOI: 10.1016/j.rmed.2008.06.008

Picavet H, Struijs J, Westert G, Utilization of health resources due to low back pain, Spine, 2008, 33, 436-444

DOI: 10.1097/BRS.0b013e318163e054

Lee, Todd A, Agreement between caregiver reported healthcare utilization and administrative data for children with asthma, Journal of Asthma, 2007, 44, 189-194

DOI: 10.1080/02770900701209723

Dubois, M. F.;Raiche, M.;Hebert, R.;Gueye, N. R., Assisted self-report of health-services use showed excellent reliability in a longitudinal study of older adults, Journal of Clinical Epidemiology, 2007, 60, 1040-1045

DOI: 10.1016/j.jclinepi.2006.12.011

Byford S, Leese M, Knapp M, et al, Comparison of alternative methods of collection of service use data for the economic evaluation of health care interventions, Health Economics, 2007, 531-536

DOI: 10.1002/hec.1175

Schmidt, S.;Thyen, U.;Chaplin, J.;Mueller-Godeffroy, E.;European, Disabkids Group, Cross-cultural development of a child health care questionnaire on satisfaction, utilization, and needs, Ambulatory Pediatrics, 2007, 7, 374-382

DOI: 10.1016/j.ambp.2007.04.007

Wolinsky, Fredric D., Hospital episodes and physician visits: The concordance between self-reports and Medicare claims, Medical Care, 2007, 45, 300-307

DOI: 10.1097/01.mlr.0000254576.26353.09

Ungar, Wendy J; Davidson-Grimwood, Sara R; Cousins, Martha, Parents were accurate proxy reporters of urgent pediatric asthma health services—a retrospective agreement analysis, Journal of Clinical Epidemiology, 2007, 60, 1176-1183

DOI: 10.1016/j.jclinepi.2007.02.002

Ford, T.;Hamilton, H.;Dosani, S.;Burke, L.;Goodman, R., The children's services interview: Validity and reliability, Social Psychiatry and Psychiatric Epidemiology, 2007, 42, 36-49

DOI: 10.1007/s00127-006-0092-9

Pollio, D. E.;North, C. S.;Eyrich, K. M.;Foster, D. A.;Spitznagel, E. L., A comparison of agency-based and self-report methods of measuring services across an urban environment by a drug-abusing homeless population, International Journal of Methods in Psychiatric Research, 2006, 15, 46-56

DOI: 10.1002/mpr.28

Rosenbaum A, Rabenhorst MM, Reddy MK, et al, A Comparison of Methods for Collecting Self-Report Data on Sensitive Topics, Violence and Victims, 2006, 21, 461-71


Sano, M.;Zhu, C. W.;Whitehouse, P. J.;Edland, S.;Jin, S.;Ernstrom, K.;Thomas, R. G.;Thal, L. J.;Ferris, S. H.;Alzheimer Disease Cooperative Study, Group, ADCS Prevention Instrument Project: pharmacoeconomics: assessing health-related resource use among healthy elderly, Alzheimer Disease & Associated Disorders, 2006, 20, S191-S202

DOI: 10.1097/01.wad.0000213875.63171.87

Guerriere, D. N.;Ungar, W. J.;Corey, M.;Croxford, R.;Tranmer, J. E.;Tullis, E.;Coyte, P. C., Evaluation of the ambulatory and home care record: Agreement between self-reports and administrative data, International Journal of Technology Assessment in Health Care, 2006, 22, 203-210

DOI: 10.1017/S0266462306051026

Booth, B. M.;Kirchner, J. E.;Fortney, S. M.;Han, X.;Thrush, C. R.;French, M. T., Measuring use of health services for at-risk drinkers: how brief can you get?, Journal of Behavioral Health Services & Research, 2006, 33, 254-264

DOI: 10.1007/s11414-006-9010-x

Chou, S. L.;Lamoureux, E.;Keeffe, J., Methods for measuring personal costs associated with vision impairment, Ophthalmic Epidemiology, 2006, 13, 355-363

DOI: 10.1080/09286580600966623

Bhandari A, Wagner T, Self-Reported Utilization of Health Care Services: Improving Measurement and Accuracy, Medical Care Research and Review, 2006, 63, 217-35

DOI: 10.1177/1077558705285298

Lamoureux, EL; Chou, SL; Larizza, MF; Keeffe, JE, The reliability of data collection periods of personal costs associated with vision impairment, Ophthalmic Epidemiology, 2006, 13, 121-126

DOI: 10.1080/09286580500536781

Tisnado D, Adams J L, Liu H, et al, What is the Concordance Between the Medical Record and Patient Self-Report as Data Sources for Ambulatory Care?, Medical Care, 2006, 44, 132-40

Book: Willis G B, Gordon Bruce Willis, Cognitive Interviewing: A Tool for Improving Questionnaire Design, illustrated, SAGE, 2005, 2005

O'Sullivan A K, Thompson D, Drummond M F., Collection of Health-Economic Data Alongside Clinical Trials: Is There a Future for Piggyback Evaluations?, Value in Health, 2005, 8, 67-79

DOI: 10.1111/j.1524-4733.2005.03065.x

Mistry H, Buxton M, Longworth L, et al., Comparison of general practitioner records and patient self-report questionnaires for estimation of costs, The European Journal of Health Economics, 2005, 6, 261-6

DOI: 10.1007/s10198-005-0300-7

Skinner K, Miller D R, Lincoln E, et al, Concordance Between Respondent Self-reports and Medical Records for Chronic Conditions: Experience From the Veterans Health Study., Journal of Ambulatory Care Management , 2005, 28, 102-10

DOI: 10.1097/00004479-200504000-00002

Janson, Martin; Carlsson, Per; Haglind, Eva; Anderberg, Bo, Data validation in an economic evaluation of surgery for colon cancer, International Journal of Technology Assessment in Health Care, 2005, 21, 246-252

DOI: 10.1017.S0266462305050336

Bowling A, Mode of questionnaire administration can have serious effects on data quality, Journal of Public Health Oxford Journals, 2005, 27, 281–91.

DOI: 10.1093/pubmed/fdi031

Sirey, J. A.;Meyers, B. S.;Teresi, J. A.;Bruce, M. L.;Ramirez, M.;Raue, P. J.;Perlick, D. A.;Holmes, D., The Cornell Service Index as a measure of health service use, Psychiatric Services, 2005, 56, 1564-1569

DOI: 10.1176/

Souza-Vazirani, D.;Minkovitz, C. S.;Strobino, D. M., Validity of maternal report of acute health care use for children younger than 3 years, Archives of Pediatrics & Adolescent MedicineArchives of Pediatrics & Adolescent Medicine, 2005, 159, 167-172

DOI: 10.1001/archpedi.159.2.167.

Rozario, P. A.;Morrow-Howell, N.;Proctor, E., Comparing the congruency of self-report and provider records of depressed elders' service use by provider type, Medical Care, 2004, 42, 952-959

Killeen, T. K.;Brady, K. T.;Gold, P. B.;Tyson, C.;Simpson, K. N., Comparison of self-report versus agency records of service utilization in a community sample of individuals with alcohol use disorders, Drug & Alcohol Dependence, 2004, 73, 141-147

DOI: 10.1016/j.drugalcdep.2003.09.006

van den Brink M, van den Hout W, Stiggelbout A, et al, Cost measurement in economic evaluation of health care. Whom to ask?, Medical Care, 2004, 42, 740-746

DOI: 10.1097/01.mlr.0000132351.78009.a1

Ruof J, Huelsemann J L, Mittendorf T, et al., Patient-reported health care utilization in rheumatoid arthritis: What level of detail is required?, Arthritis Care & Research , 2004, 51, 774-81

DOI: 10.1002/art.20686

Eaton, Hoagwood K.;Jensen, P. S.;Arnold, L. E.;Roper, M.;Severe, J.;Odbert, C.;Molina, B. S.;Group, M. T. A. Cooperative , Reliability of the services for children and adolescents-parent interview, Journal of the American Academy of Child & Adolescent Psychiatry , 2004, 43, 1345-1354

DOI: 10.1097/01.chi.0000139558.54948.1f

Jensen, P. S.;Eaton, Hoagwood K.;Roper, M.;Arnold, L. E.;Odbert, C.;Crowe, M.;Molina, B. S.;Hechtman, L.;Hinshaw, S. P.;Hoza, B.;Newcorn, J.;Swanson, J.;Wells, K., The services for children and adolescents-parent interview: development and performance characteristics, Journal of the American Academy of Child & Adolescent Psychiatry, 2004, 43, 1334-1344

DOI: 10.1097/01.chi.0000139557.16830.4e

Marks, A. S.;Lee, D. W.;Slezak, J.;Berger, J.;Patel, H.;Johnson, K. E., Agreement between insurance claim and self-reported hospital and emergency room utilization data among persons with diabetes, Disease Management, 2003, 6, 199-205

DOI: 10.1089/109350703322682513.

Cooper NJ, Mugford M, Symmons D, Development of resource-use and expenditure questionnaires for use in rheumatology research, The Journal of Rheumatology, 2003, 30, 2485-2491

Cheung, A. H.;Dewa, C. S.;Wasylenki, D., Economic grand rounds: impact on cost estimates of differences in reports of service use among clients, caseworkers, and hospital records, Psychiatric Services, 2003, 54, 1328-1330

DOI: 10.1176/

Richards, S. H.;Coast, J.;Peters, T. J., Patient-reported use of health service resources compared with information from health providers, Health & Social Care in the Community, 2003, 11, 510-518

DOI: 10.1046/j.1365-2524.2003.00457.x

Evans, C.;Crawford, B.;Doyle, J., Usefulness of resource utilization estimates from piggyback studies in rheumatoid arthritis, Expert Review of Pharmacoeconomics and Outcomes Research, 2003, 3, 685-689

DOI: 10.1586/14737167.3.6.685

Cronan, T. A.;Walen, H. R., Accuracy of self-reported healthcare use in patients with osteoarthritis, Journal of Rheumatology, 2002, 29, 2181-2184

Korthuis P, Asch S, Mancewicz M, et al, Do interviews agree with medical record and pharmacy data?, Medical Care, 2002, 40, 1270-1282

DOI: 10.1097/01.MLR.0000036406.6131

Kennedy, A. D.;Leigh-Brown, A. P.;Torgerson, D. J.;Campbell, J.;Grant, A., Resource use data by patient report or hospital records: do they agree?, BMC Health Services Research, 2002, 2, 2

DOI: 10.1186/1472-6963-2-2

Petrou S, Murray L, Cooper P, et al, The accuracy of self-reported healthcare resource utilization in health economic studies, International Journal of Technology Assessment in Health Care, 2002, 18, 705-710

DOI: 10.1017/S026646230200051X

Clegg L , Potosky A , Harlan L, et al , Comparison of self-reported initial treatment with medical records: results from the prostate cancer outcomes study, American Journal of Epidemiology, 2001, 154, 582-587

DOI: 10.1093/aje/154.6.582

McColl E, Jacoby A,Thomas L, et al, Design and use of questionnaires: a review of best practice applicable to surveys of health service staff and patients, Health Technology Assessment, 2001, 5, 1-250.

Ritter, P. L.;Stewart, A. L.;Kaymaz, H.;Sobel, D. S.;Block, D. A.;Lorig, K. R., Self-reports of health care utilization compared to provider records, Journal of Clinical Epidemiology, 2001, 54, 136-141

DOI: 10.1016/S0895-4356(00)00261-4

Evans C J, Crawford B, Data collection methods in prospective economic evaluations: how accurate are the results?, Value in Health, 2000, 3, 277-86

DOI: 10.1046/j.1524-4733.2000.34005.x

Goossens M, Mölken M, Vlaeyen J, et al, The cost diary: a method to measure direct and indirect costs in cost-effectiveness research, Journal of Clinical Epidemiology, 2000, 53, 688–695

DOI: 10.1016/S0895-4356(99)00177-8

Reijneveld S, The cross-cultural validity of self-reported use of health care. A comparison of survey and registration data, Journal of Clinical Epidemiology, 2000, 53, 267-272

DOI: 10.1016/S0895-4356(99)00138-9

Wallihan, D. B.;Stump, T. E.;Callahan, C. M., Accuracy of self-reported health services use and patterns of care among urban older adults, Medical Care, 1999, 37, 662-670

DOI: 10.1097/00005650-199907000-00006

Johnston K, Buxton M J, Jones D R, et al, Assessing the costs of healthcare technologies in clinical trials, Health Technology Assessment , 1999, 3, 1-76

Mirandola, M.;Bisoffi, G.;Bonizzato, P.;Amaddeo, F., Collecting psychiatric resources utilisation data to calculate costs of care: a comparison between a service receipt interview and a case register, Social Psychiatry & Psychiatric Epidemiology, 1999, 34, 541-547

DOI: 10.1007/s001270050173

Coyle, D.;Lee, K.;Drummond, M., Comparison of alternative sources of data on health service encounters, Journal of Health Services & Research Policy, 1999, 4, 210-214

DOI: 10.1177/135581969900400404

Kashner, T. M., Measuring use of outpatient care among mentally ill individuals: A comparison of self reports and provider records, Evaluation and Program Planning, 1999, 22, 31-40

DOI: 10.1016/S0149-7189(98)00038-X

Becker, T.;Knapp, M.;Knudsen, H. C.;Schene, A.;Tansella, M.;Thornicroft, G.;Vazquez-Barquero, J. L., The EPSILON study of schizophrenia in five European countries: Design and methodology for standardising outcome measures and comparing patterns of care and service costs, British Journal of Psychiatry, 1999, 175, 514-521

DOI: 10.1192/bjp.175.6.514

Ungar, W. J.;Coyte, P. C., Health services utilization reporting in respiratory patients. Pharmacy Medication Monitoring Program Advisory Board, Journal of Clinical Epidemiology, 1998, 51, 1335-1342

DOI: 10.1016/S0895-4356(98)00117-6

Zanis, D. A.;Thomas, McLellan A.;Belding, M. A.;Moyer, G., A comparison of three methods of measuring the type and quantity of services provided during substance abuse treatment, Drug and Alcohol Dependence, 1997, 49, 25-32

DOI: 10.1016/S0376-8716(97)00135-X

Grimmer, K.;Bowman, P., The effect of age and chronicity on patient recall of public hospital outpatient clinic use, Australian Health Review, 1997, 20, 78-87

DOI: 10.1071/AH970078

Roberts, R. O.;Bergstralh, E. J.;Schmidt, L.;Jacobsen, S. J., Comparison of self-reported and medical record health care utilization measures, Journal of Clinical Epidemiology, 1996, 49, 989-995

DOI: 10.1016/0895-4356(96)00143-6

Clark, R. E.;Ricketts, S. K.;McHugo, G. J., Measuring hospital use without claims: a comparison of patient and provider reports, Health Services Research, 1996, 31, 153-169

Breda, Carolyn S, Parent and institutional agreement on children's use of mental health services, Evaluation and Program Planning, 1996, 19, 165-173

DOI: 10.1016/0149-7189(96)00007-9

Ascher, BH; Farmer EMZ; Burns BJ; Angold A, The Child and Adolescent Services Assessment (CASA): Description and Psychometrics, Journal of Emotional and Behavioral Disorders, 1996, 4, 12-20

DOI: 10.1177/106342669600400102

Weissman, J. S.;Levin, K.;Chasan-Taber, S.;Massagli, M. P.;Seage, G. R., III;Scampini, L., The validity of self-reported health-care utilization by AIDS patients, AIDS, 1996, 10, 775-783

Reuben, D. B.;Wong, R. C.;Walsh, K. E.;Hays, R. D., Feasibility and accuracy of a postcard diary system for tracking healthcare utilization of community-dwelling older persons, Journal of the American Geriatrics Society, 1995, 43, 550-552

Glandon, G. L.;Counte, M. A.;Tancredi, D., An analysis of physician utilization by elderly persons: systematic differences between self-report and archival information, Journal of Gerontology, 1992, 47, S245-S252

DOI: 10.1093/geronj/47.5.S245

Green, S.;Kaufert, J.;Corkhill, R.;Creese, A.;Dunt, D., The collection of service utilisation data: a research note on validity, Social Science & Medicine, 1979, 13A, 231-234

DOI: 10.1016/0271-7123(79)90032-4

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